Tuesday, March 31, 2015

On Monday I went to the cardiologist because of my edema.  The doc said that my CT scan showed that there was some fluid in my lungs; not a large amount, but it's going to be monitored.  He said that
down the road he may have me go for a test to check out the pericardium.  For the edema, he put me on Bumex and Zaroxolyn.  I go back in 6 weeks to see how things are going.  I hope the meds get rid of all this fluid.

Today I went to the oncologist just for a check on my CBC, which was good.  I asked if I could go back to weekly treatment, because thee q 3 week treatment really knocked the stuffing out of me.  We wound up going with a treatment schedule of two weeks on then two weeks off.  I start back on chemo on April 14.  April 14 was the date the Titanic struck an iceberg.  Abraham Lincoln was shot on April 14.  It's the day before federal income tax day in the US.  HIPAA went into effect on April 14.  Oh, and I turn 52 on April 14.  Not exactly a great day in history. j/k

So, that's the scoop for this week!

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Saturday, March 28, 2015

I got a letter today from HealthWell Foundation that I have been pre-approved for a grant for $4180 for the enrollment period of 032215-032216.  I have to send in some documentation to finalize my approval, but this will be a huge relief if my authorization is finalized.  All they need is copies of my MC and prescription cards, and the doctor has to fill out a form.

Hopefully this will be enough to cover all of the Neupogen I'll need.  Even if it isn't, it's a huge chunk out of what I would have had to pay, and it will give me time to find other coverage when this one runs out.

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Friday, March 27, 2015

This has been a very rough week.  We made some changes in my chemo regimen, and I'm having a rough time; I'm so wiped out.

I have to use Neupogen to keep my WBC up, but it costs $1800 after insurance pays its portion.  Who has that kind of money sitting around?  I took money out of my retirement fund, but I don't want to keep doing that; I need money for down the road.

So that's my rant.  I'm too tired to go into details. but I feel so discouraged.  Today is one of those days that I regret going through treatment...deeply regret it.

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Wednesday, March 18, 2015

Once again, chemo this week was cancelled.  I wound up spending most of the day at the hospital getting one test after another.  The good news is that my heart is OK after all--false alarm on the R heart failure.  The CT scan picked up something in my lungs called "ground glass opacities."  The onc. said that as long as I don't have a fever I don't need to worry.  He said that they could be caused from the Gemzar, so next week we're going to try to do the treatment minus the Gemzar.

I am really tired.  That day took a lot out of me.  What was really nice was that I got a call from the oncologist checking up on me to make sure I was OK.

So, today I'm just resting up and trying not to be too frustrated over another complication with treatment.

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Thursday, March 12, 2015

My best friend in nursing school used to say, "It's always darkest before it goes completely black."  She had a terrific sense of gallows humor.  I miss that humor and could really use some of it now.

Last week I had an ultrasound to rule out a blood clot.  The good news was that there was no clot.  The bad news?  It looks like I have R heart failure.  I will be seeing a cardiologist the end of this month, and from there, who knows?  In any case, this probably explains my fatigue as well as my SOB when I go up the steps.

As far as the chemotherapy goes, I couldn't have it again because my counts were still too low.  The doctor was fairly certain that next week I will be able to be treated.

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Tuesday, March 3, 2015

Foiled again!  My counts are too low for chemotherapy.  Additionally, I have three open wounds on my abdomen that I have been trying to get to heal, with no success.  I screwed up my courage and showed them to the oncologist.  He was very worried and said the wounds alone would keep me from getting treatment, but with low counts too, it was a definite no go.  So, tomorrow I'm supposed to go to a wound specialist.  The onc. said he wouldn't be surprised if I wound up getting admitted...I. do. not. want. to. be. admitted.

After the debacle in LGH's ED, I'm not even sure where I would go, should I be admitted.  I guess if I had to choose I would go to Lancaster Regional, AKA "Ain't Joe's.

So, that's my tale of woe for today.  I think I need to end with another "Far Side" cartoon:

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Monday, March 2, 2015

Last night was exciting, and not in a good way.  I fell late (for me) last evening...around 10pm.  I couldn't get up off the floor, not even with the help of my parents.  I think part of it was due to my arms and  legs being so weak that I couldn't boost myself up; the other was that due to all the hardware in my ankles and legs, I just have no flexibility.  After multiple attempts at trying to get up, my father called EMS, and they came and got me up on the first try.

Talk about humiliation.  The medics were very nice, but I was absolutely mortified.  It makes me worry about when I get older.  It's not like I'm going to get stronger.

Oh well.  Tomorrow is another chemo day.

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